The balance the Chancellor needs to strike in delivering his first Budget on Wednesday has been made even tougher by the need to prioritise measures to tackle coronavirus.
Our President Haseeb Ahmad sets out how industry is working to find treatments and cures for some of the world’s most complex diseases. Nowhere is the need to find new medicines more acute than in rare diseases, many of which are genetic and affect the youngest patients.
We spoke to Dr Lucy McKay, CEO of the charity Medics4RareDiseases. She told us why health professionals should ‘dare to think rare’ in their patients.
Prabhjot is a is a university lecturer in living in London. She describes her experience of living with polymyositis.
Karen Owen lives with a condition called hereditary angioedema (HAE). She has learned to take control of HAE through self-management techniques and peer support.
February is Raynaud’s awareness month. Physiotherapist and Parkinson’s dance teacher Liz Hooks has the condition and for her, a little kindness and the offer of some hot water would go a long way to help manage it.
Professor Derralynn Hughes is Professor of experimental haematology based at the Royal Free London NHS Foundation Trust and University College London, and an expert on a group of rare diseases called lysosomal disorders.
Fabry disease is a rare disorder caused by an enzyme deficiency in the body. University of Southampton student Sebastiaan Van Dyck from Belgium describes his journey with Fabry disease and how he copes with the condition.
Anna Turner from Waringstown, Northern Ireland, recently celebrated her 8th birthday with family and friends. She lives with a rare condition called hypophosphatasia (HPP).
The new GP contract will change how vaccines are delivered and paid for in primary care. It’s the most significant overhaul in decades and is a step in the right direction to improving vaccination coverage across England.
The Scottish Parliament’s Health and Sport Committee is investigating how Scotland’s medicines supply and demand system works. For us, it’s an opportunity to raise the importance of poor patient adherence and explain why we believe it must be a public health priority.
