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Let's make rare disease treatments less rare

ABPI President Haseeb Ahmad says that genome sequencing and advanced therapies give hope to people with rare diseases and their families – we have to get them into the hands of patients.

Evolving the UK health system to support innovation for the rare disease community

Nicola Redfern, General Manager of bluebird bio in the UK, describes the commercial challenges for rare disease medicines in the UK and reflects on the opportunities of gene therapies. 

Rare Disease 101 - the first cross-rare disease course for healthcare professionals

Dr Lucy McKay, CEO of the charity Medics4Rare Diseases tells us why their new educational module – Rare Disease 101 - should be essential for all healthcare professionals.

There’s nothing we can’t do or achieve, but people with thalassaemia need understanding and support

Thalassaemia major is a serious, genetic blood disorder. Roanna Maharaj was diagnosed with a severe form of the disease as a baby in the Caribbean. This is her story.

Research must be for everyone, says ABPI President

In its second annual clinical trials report launched this week, the ABPI is calling for the research community to work with Government, funders, and the public to tackle issues around diversity and inclusion in research. 

A Global Science Superpower: The Future of Medicines Valuation

The ABPI partnered with Reform on an event on the NICE Methods Review, titled 'A Global Science Superpower: The Future of Medicines Valuation.

It’s never been more important to tell the great story of vaccines

ABPI Chief Executive talks about the importance of vaccines, as ABPI launches its new campaign, #ValuingVaccines. 

UK steps up its role in fighting global AMR

With 10 million people a year projected to die from antibiotic-resistant infections by 2050, it’s important that all partners, including the pharmaceutical industry, step up and work together to tackle this issue.

The taskforce for lung health shows that collaboration gets results

The Taskforce for Lung Health has been awarded Charity Collaboration of the Year at the Charity Times awards. Su Jones, NHS Engagement Partner at the ABPI and Dr Alison Cook, Chair of the Taskforce for Lung Health, explain the importance of the Taskforce and look to the future of its work.  

Gavi: Partnering to protect future generations from infectious diseases

As Gavi marks its twentieth anniversary, a new report from the ABPI and IFPMA looks at the past successes of the Vaccines Alliance and what the future holds.

International Clinical Trials Day - how is COVID-19 affecting research?

On International Clinical Trials Day, Dr Sheuli Porkess considers the impact that COVID-19 is having on clinical trials and the potential lessons for the future research.
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