Fabry disease is a rare disorder caused by an enzyme deficiency in the body. University of Southampton student Sebastiaan Van Dyck from Belgium describes his journey with Fabry disease and how he copes with the condition.
Anna Turner from Waringstown, Northern Ireland, recently celebrated her 8th birthday with family and friends. She lives with a rare condition called hypophosphatasia (HPP).
The new GP contract will change how vaccines are delivered and paid for in primary care. It’s the most significant overhaul in decades and is a step in the right direction to improving vaccination coverage across England.
The Scottish Parliament’s Health and Sport Committee is investigating how Scotland’s medicines supply and demand system works. For us, it’s an opportunity to raise the importance of poor patient adherence and explain why we believe it must be a public health priority.
The ABPI’s Research, Medical and Innovation team is holding its first member conference this week on increasing trust in pharmaceutical industry research. Dr Sheuli Porkess outlines one of the ABPI’s priorities – the drive for research to be open, accessible and understandable.
Recommendations have been published in the British Journal of Cancer on how best to conduct Complex Innovative Design (CID) trials. Dr Ali Hansford, Head of Regulatory Strategy Policy, looks into these recommendations in more detail.
This week Sajid Javid will stand at the Dispatch Box for his first Commons set piece since he became Chancellor.
Simon Denegri, NIHR National Director for Patients, Carers and the Public, sets the scene for public involvement in research ahead of his speech at the ABPI and AMRC's joint Patient's First conference next week.
Dr Sheuli Porkess of the ABPI applauds the Sector Deal 2 for helping to boost opportunities for patients to engage in research, but says there’s more to do.
Professor Carole Longson, Chief Scientific Officer at the Association of the British Pharmaceutical Industry gives her nominations for a woman in science to go on the £50 note.
The ABPI sponsors the Andrew Blake Tribute Award, which recognises the significant contributions of animal technologists to improving laboratory animal welfare. This year we congratulate Stephen Woodley and Stuart Newman for winning the 2019 Award.