While the core principles of behaviour should remain fairly constant, this is a developing area with new information and updates continuing to emerge. We will aim to update the sourcebook regularly and would appreciate any comments and feedback.
As a reminder, while this new sourcebook provides informal guidance, following it does not guarantee compliance. Companies need to ensure they comply with the ABPI Code.
ABPI:
Code of Practice
ABPI/National Voices:
Working Together, Delivering For Patients
Association of Medical Research Charities:
An Essential Partnership: A guide for charities working with industry
EFPIA:
Working Together with Patient Groups
EFPIA:
Health Collaboration Guide 2017
IFPMA:
Code of Practice 2019
Patient Focused Medicines Development, Workgroup of European Patient Advocacy Networks, Myeloma Patients Europe:
Reasonable Agreements between Patient Advocates and Pharmaceutical Companies
European Patients’ Academy on Therapeutic Innovation
European Respiratory Journal:
The Expert Patient: towards a novel definition
National Institute for Health Research INVOLVE
Innovative Medicines Initiative:
PARADIGM
Change Foundation:
Should Money Come Into It?
We would like to thank the following organisations for their help and contributions in developing this guidance:
ABPI Head Office
7th floor, Southside
105 Victoria Street
London
SW1E 6QT
Telephone: +44 (0) 20 7930 3477
Email: getintouch@abpi.org.uk
https://www.abpi.org.uk/
https://twitter.com/ABPI_UK
7th floor, Southside
105 Victoria Street
London
SW1E 6QT
Telephone: +44 (0) 7747 8880
www.pmcpa.org.uk
https://twitter.com/PMCPAUK
Complaints should be submitted to the Director of the PMCPA at the above address, email complaints@pmcpa.org.uk.